Richard Engel, the chief foreign correspondent for NBC News, broke the heartbreaking news of the death of his little son. The six-year-old youngster suffered from Rett Syndrome, a genetic neurological condition for which there is no cure.
On Twitter, Engel broke the heartbreaking news and stated, “Our precious son Henry passed away. He glowed with an infectious laugh, sweet blue eyes, and a simple smile. Our love always surrounded him, and he gave it back in spades. “Mary and Richard,” he tweeted as his signature.
The tweet contained a link to the Texas Children’s Hospital, which led site visitors to a touching tribute to Henry posted on the hospital’s page. Henry Engel, a heroic young man who battled Rett syndrome and encouraged doctors to develop a cure, regrettably passed away on August 9, 2022.
The capacity to speak, move, eat, and breathe freely are just a few of the “almost every area of a child’s existence” that can be negatively impacted by Henry’s syndrome.
The International Rett Syndrome Foundation estimates that 1 in 10,000 females and even fewer males are affected by this illness.
Henry was unique in a lot of ways. I fell in love with him the moment I first met him because of his adoring grin and how he looked into my eyes. It was amazing to see him face this dreadful cancer in silence. We’ll keep working as hard as we can to develop cures. We will remember his life in this manner.
Following Henry’s Rett Syndrome diagnosis in 2017, Engel and his wife, Mary Forrest, have been open about Henry’s medical journey. Engel revealed details about his son’s health in an opinion piece for Today in 2018. He described how precious Henry was and how much joy he had brought to their lives.
None of this implies that we do not value our time spent with Henry. No child has ever been raised with more love, in my opinion.
As Engel stated, “We gather on our bed multiple times a day for what we call ‘cuddle parties,’ where we joke with him, touch him, compliment him (he likes to hear his name and be complimented), and curl his thick, fabulous hair in our fingers.
He remembered the memorable occasion when his son first said, “dada.”
It was confirmation that he was there, that he knew who I was, that his mother and I were positive influences in his life, and most importantly, that he loved us.
In March 2022, Engel tweeted that his son’s condition worsened, which was the most current update on Henry’s status before he passed away.
According to Yahoo!, Henry Engel’s cells are already being used by the Jan and Dan Duncan Neurological Research Institute to attempt and treat the condition.
Peace be with you, tiny one.
Our sympathies and thoughts are with the Engel family.